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The Knowledgeable Patient

Learn how to place communication and participation at the heart of evidence-based healthcare The Knowledgeable Patient: Communication and Participation in Health sits at the forefront of the challenging, changing 21st century landscape. The 'knowledgeable patient' as an individual can take many forms: patient, family carer, consumer advocate, or member of the public interested in health issues. In each of these roles, knowledgeable patients interact with health professionals by asking questions about the evidence for treatment, seeking support, exchanging views, and contributing experiences and new ideas on how to improve the health system. Drawing from several research paradigms, The Knowledgeable Patient is an essential guide to a new era of complex healthcare. Integrating consumer stories and evidence from systematic reviews, it examines key communication and participation issues in a range of contexts, including: * surgery * safe medicine use * chronic disease self management * the complexity of multimorbidity * notification of rare disease risk. The Knowledgeable Patient is international in scope with researched examples spanning living in the community, health service treatment, governance, and policy making. It provides health professionals with new ideas, concepts, evidence, and practical tools to understand the central role of communication and participation to a well-functioning health system. It is an ideal reference for undergraduate and postgraduate students studying the health sciences. Watch a video about The Knowledgeable Patient: Communication and Participation in Health from the author, Sophie Hill:
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Table of Contents

List of contributors, vii Preface, ix Acknowledgements, xii Chapter 1 Does communication with consumers and carers need to improve? 1 Megan Prictor and Sophie Hill Chapter 2 A new conceptual framework for advancing evidence-informed communication and participation, 12 Sophie Hill and Mary Draper Chapter 3 Interventions for communication and participation: their purpose and practice, 27 Sophie Hill, Dianne B. Lowe and Rebecca E. Ryan Chapter 4 Identifying outcomes of importance to communication and participation, 40 Sophie Hill, Dianne B. Lowe and Joanne E. McKenzie Chapter 5 Communicating risk and risk statistics for preventing chronic disease, 54 Sophie Hill, Adrian G.K. Edwards and Dianne B. Lowe Chapter 6 What does participation mean? Reshaping our understanding of the meaning of surgery, 67 Sophie Hill and Jessica Kaufman Chapter 7 Disclosure: a case study of communication about medically acquired risk for a rare disease, 82 Rebecca E. Ryan, Jessica Kaufman and Sophie Hill Chapter 8 How I used a systematic review from The Cochrane Library, 94 Helen Dilkes, Jessica Kaufman and Sophie Hill Chapter 9 Evidence and resources for systems decision-making: improving the experience of health and treatment, 105 Dianne B. Lowe, Sophie Hill and Rebecca E. Ryan Chapter 10 Looking at online health information more critically, 115 John Kis-Rigo Chapter 11 Learning to communicate, 125 Megan Prictor, Simon Lewin, Brian McKinstry and Jessica Kaufman Chapter 12 Getting the most out of research: using what we know, 143 Dell Horey, Jessica Kaufman, Sophie Hill Chapter 13 Research agendas for knowledgeable patients, 151 Ruth Stewart and Sandy Oliver Chapter 14 Managing multiple health problems: is there evidence to support consumer-focused communication and participation? 161 Rebecca E. Ryan and Sophie Hill Chapter 15 Partners in care ? an evidence-informed approach to improving communication with women in a hospital setting, 173 Sophie Hill, Maureen Johnson and Mary Draper Chapter 16 Building health-literate societies, 184 Sophie Hill, Dianne B. Lowe, Chaojie Liu and Nancy Santesso Chapter 17 Tools for building research capacity and knowledge transfer, 196 Helen Dilkes, Jessica Kaufman and Sophie Hill Chapter 18 Emerging technologies for health communication, 208 Yannis Pappas and Josip Car Index 218

About the Author

Sophie Hill, MA, PhD, Coordinating Editor, Cochrane Consumers and Communication Review Group, Head, Centre for Health Communication and Participation, Australian Institute for Primary Care and Ageing, La Trobe University, Victoria, Australia


Besides health professionals and users of healthservices, this book is an indispensable asset to healthcarelibrarians who endeavour to save the time of the reader byidentifying systematic reviews and careful analysis of researchstudies on carefully selected themes. This Cochrane handbook willenrich the practice of all the partners in care and it needs to bewidely available in clinicians practice rooms, collegelibraries and hospital wards. (European Journal forPerson Centered Healthcare, 23 January 2013) I highly recommend this book to anyone with an interestin patient and public involvement within any health-relateddiscipline. (Royal College of Pathologists,2012)

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