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Family Communication about Genetics


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Table of Contents

Contents Introduction - Clara L. Gaff, Carma L. Bylund Chapter 1: Principles of Family Communication - Carma L. Bylund, Kathleen M. Galvin, Clara L. Gaff Chapter 2: Concepts in Genetic Healthcare - Clara L. Gaff, Sylvia Metcalfe Chapter 3: Societal, expert, and lay influences - Roxanne Parrot, Michelle Miller-Day, Kathryn Peters, James Dillard Chapter 4: Family Narratives - April Trees, Jody Koenig-Kellas, Myra Roche Chapter 5: Timescapes - Maggie Gregory, Anna Middleton, Paul Atkinson Chapter 6: Family Systems - Kathleen M. Galvin, Mary-Anne Young Chapter 7: Management of Privacy Ownership and Disclosure - Sandra Petronio, Clara L. Gaff Chapter 8: Management of Uncertainty - Heather Skirton, Carma L. Bylund Chapter 9: Attributions and Personal Theories - Marion F. McAllister, Christina M. Sabee Chapter 10: Communication Goals and Plans - Jennifer A. Samp, Melanie Watson, Amanda Strickland Chapter 11: Genetic Counseling and Family Communication Patterns - Ascan Koerner, Pat McCarthy Veach , Bonnie LeRoy Chapter 12: Ethical Perspectives - Samantha J. Leonard, Ainsley Newson Chapter 13: Legal Perspectives of Family Communication - Loane Skene, Laura Forrest Chapter 14: Helping Parents Talk to their Children - Jennifer Sullivan, Allyn McConkie-Rosell Chapter 15: Facilitating Family Communication about Genetics in Practice - Clara L. Gaff, Kathleen M. Galvin, Carma L. Bylund Appendix

About the Author

Clara L. Gaff, PhD, is a certified Genetic Counsellor (Australasia), who has practiced in Australia and the United Kingdom with a focus on cancer genetics. She has been active in genetic counselling training programs and the education of health professionals in genetics. She is currently a Senior Genetic Counsellor and Clinical Associate Professor and editorial board member of the Journal of Genetic Counseling. Carma Bylund, Ph.D. is a behavioral scientist with expertise in family and clinical communication. She teaches communication skills to practicing clinicians and studies this process as well as other facets of clinical and family communication. She is currently Director of the Communication Skills Research and Training Laboratory at Memorial Sloan-Kettering Cancer Center and Assistant Professor of Psychology at Weill Cornell Medical College.


"It is well thought out, with refreshing new ideas and concepts that will help clinical genetics practitioners not only understand their patients, but also work more effectively with them." --Doody's

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