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Families Raising Disabled Children


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Table of Contents

Preface Acknowledgements Theorising Parents, Professionals and Disabled Babies Methodology Research Encounters Unmaking Children productive Parental Alliances Community Practices Professional, Institutional and Ethical Practices The Gender Dynamics, Transformative Potential and Boundaries of Care Values of Enabling Care and Social Justice References Index

About the Author

JANICE MCLAUGHLIN is is Executive Director of the Policy, Ethics and Life Sciences (PEALS) Research Centre, Newcastle University, UK

DAN GOODLEY is Professor of Psychology and Disability at the Department of Psychology and Social Change, Manchester Metropolitan University, UK.

EMMA CLAVERING was one of the research associates involved in this study, she continues to work with Janice McLaughlin in PEALS in associated research projects.

PAMELA FISHER was one of the research associates involved in this study, she is now Senior Lecturer in Sociology at the University of Huddersfield, UK.


'This well written, incredibly emotive and thought-provoking book is about revealing the tensions, dilemmas and impacts for parent's, carers and professionals who have, or come into contact with, disabled babies and children...[It] is valuable in its rich content, but is also theoretically sophisticated. The insights provided for families of disabled children, professionals working with disabled children and students and academics who are interested in disability and families alike will benefit from reading this accessible book.' - Chrissie Rogers, Disability& Society

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